Changing the delivery of services for children and young people with complex health needs
Did you know that University College London researchers have received funding to prepare a bid for a full multi-million pound hub?
Led by University College London, we’re working with parents and children with lived experience, alongside Great Ormond Street Hospital and two other charity partners, MENCAP and WellChild.
Children with complex health needs and their families often need to attend a variety of health appointments, across different services and care providers. Being able to access these services comes with its own challenges for families, particularly those from deprived communities: how to navigate multiple different services, rearranging lives around appointments, advocating for their child with professionals, plus the daily challenges of parenting itself.
Working with our partners, we’ve recognised that the system needs to better support children with complex health needs and their families to access the services, especially during key transition points for these children and their families within the most underserved communities.
By bringing our expertise in hearing the voices of young people and their families, SPROCKET aims to change the delivery of services by placing the needs and voices of children with complex health needs, and their families, at the centre of an 18-month development phase for the SPROCKET Innovation Hub.
We want to make sure families have a voice and are part of making decisions in our project. This survey will ask about your communication preferences and ideas on how best to partner with families. We will use your responses to inform our approach and how we work.
SPROCKET is jointly funded by the NIHR Health and Social Care Delivery Research (HSDR) programme (Project ID: NIHR156988) and the UK Research and Innovation Engineering and Physical Sciences Research Council (EPSRC).
